Being lifted into place
Looking down at the floor of the roof in front I saw some items that, even though it had been over 20 years, their names came rushing to me. Prussik loop, spectra cord, a Figure Eight on a bight and a couple of daisy chains. These were things I had used extensively in the 1990s, when I ran a challenge course for the local school district where I taught. My mind began drifting back to that time. Climbing and rappelling were part of most days when I would be hosting one of the grades from the school. I could remember the feelings of freedom, self-control and exhilaration as I controlled my descent to the ground. Suddenly a loud voice broke my daydreaming and I was quickly brought back to reality. It was June 9, 2018 and I was being prepared to rappel off a 16-story building in Watertown New York.
Three years ago, my good friend and colleague, Steve Robinson had gone Over the Edge (OTE) as part of an annual fundraiser for the United Way of Northern New York. He dedicated his fundraising efforts to me because he knew I would be doing it if I could and nobody thought I would ever rappel again. His effort got me thinking and I began to wonder if maybe I could do it. I knew there would be lots of issues and lots of reasons to say no, but I decided to try. To my surprise the two major organizations involved, the United Way and the people from Over the Edge, were very receptive. Over the past 19 years I had become used to people telling me there was no way I could do this or that.
The rappel today was going to be different. Not only was there new hardware like the RIP descender, but I was going to be doing it in my wheelchair. I felt this was an opportunity to pay back to the people of the community that had given so much to my wife and I over the past 19 years. The United Way donates money to a number of charities and local groups. I also hope my going Over the Edge would remind everybody that we are all capable of doing much more than we think we can. That lesson has been driven home to me time and time again since I became quadriplegic.
Rappelling down Midtown Towers
Family members and most of my friends truly thought this was crazy. Why, many of them asked, place yourself in this risky situation? None of them realized the risk was totally perceptional. My descent would be one of the safest things I have ever done. With the help of several skilled professionals and soldiers from the Sergeant Audie Murphy Club from Fort Drum I was prepared and placed into position for my descent. Because of my limited range of motion another person would be going with me to help facilitate a smooth descent.
As I began my way down I happened to glance a few blocks away and notice an individual sitting in a wheelchair watching me. I could only wonder what they were thinking, but I found myself wanting to yell to him “It all starts with a dream.”
In closing, I would like to recognize the people who helped make this possible Bob Gorman of United Way, Robert Pitkin of Over The Edge, Les Brook of Marra”s Homecare, Bruce Wright of Guilfoyle Ambulance, my good friend Steve Robinson and all who donated the United Way of NNY.
Posted in Ability, Adapting Equipment, Adaptive Technology, Attitude, Behavior, Community Inclusion, Determination, Disability, Education, Friends, Friendship, Observation, Reality, Recreation, The Struggle
Tagged adapting, control, life lesson, outdoors, physically challenged, Recreation
The light, from the full moon, was twinkling off the water as we slid our kayaks into the lake. We had paddled here many times before, but there was always something special when paddling under a full moon. The small little lake hidden off an old road in Jefferson County, was absolutely beautiful. It was probably close to midnight when we loaded the kayaks back on the truck and headed for home. Little did I realize that the time it would be many years before I would return.
After my accident in 1999 I wondered if I would ever go back and paddle on this lake again. In my mind, I set it as a goal not knowing if it was even realistic. In the rehabilitation hospital in 1999 I read a quote in a book written by Christopher Reeve. It had a tremendous impact on my attitude toward my own rehabilitation. Reeve said:
“I refuse to allow a disability to determine how I will live my life. I don’t mean to be reckless, but setting a goal that seems a bit daunting actually is very helpful toward recovery.”
I began kayaking again in 2003. We had to start from scratch. No information was available on quadriplegics kayaking. Progress was slow. It took a group of people for me to go at all; as a result, I only got out a couple times a year. So improvements and adaptions were slow. Once I even tipped the kayak over and since I was completely strapped in and my hands strapped on the paddle would have drowned if it wasn’t for the quick thinking of two members of my “entourage”. Despite all of that, progress moved ahead, first pontoons, next a stadium seat whose back was raised by a local machinist, chest laterals were added and after much additional tweaking during my one paddle last year I decided everything was stable enough to go for my goal. Through all these years I was paddling on a large pond owned by good friends of ours. But in the back of my mind always was the dream to return to Payne Lake.
Steve fishing for bass
Yesterday, I awoke from the dream, many times in our lives, we imagine certain events happening and when they do they fall far short of the scenario that had been created in our mind. Yesterday the experience exceeded everything that I had hoped for. We paddled for several hours. My wife and I together on the water for the first time in over 18 years. The lake whose aesthetics I could only dream of were more imposing in person. By sheer accident, I paddled up on a heron, which I was unaware of, until I was almost on top of her. We watched her fly from spot to spot and even saw her catch a small fish. My friend Steve, without whose help I would not do half of the things I do, had a bass launch out of the lily pads to take his lure, but it slipped the hook during some aerial acrobatics. I live for opportunities like this.
What a special day.
The moral of the story is don’t stop dreaming. Dreams really can come true if you continue to work on them and refuse to give up.
Posted in Ability, Adapting Equipment, Adaptive Technology, Attitude, Behavior, Determination, Disability, Education, Friends, Friendship, Love, Nature, Observation, Reality, Recreation, Sensitivity
Tagged adapting, Caregiver, life lesson, lifestyle, natural environment, outdoors, physically challenged, quadriplegia, Recreation, using your mind
The song Simple Gifts is a hymn written in the 1840s by a member of the Shaker Community. The Shakers were a religious sect that migrated to America from England in the late 1700s. Their religious principles focused around being satisfied with the simplistic existence and the natural environment. The community produced a lot of very simple items which they sold to maintain their existence. The items stressed simplicity and functionality. You may have even heard of Shaker furniture which is still prized today by many people.
Every season seems to bring with it particular “simple gifts”. This spring was no exception. I have been struggling with an extended period of depression, but with the arrival of spring came certain “gifts” that I always look forward to. One of the earliest is, after a long, cold winter, just sitting in the warmth of the sun and feeling my body warm. (Sitting In The Mornin’ Sun)
Another of nature’s simple gifts is the arrival of the birds which have migrated south for the winter. Many of those returning are notable because of their beautiful colors such as the Baltimore oriole, the Rose Breasted Grosbeak and the Indigo Bunting. Being confined to a wheelchair encourages one to spend more time bird watching than when able-bodied. Two of my favorite species to observe are not brilliantly colored, but are enjoyable to watch because of their fascinating behavior and their willingness to live close to man. Since my injury, we have done much to encourage birds to share our environment with us. Every year swallows, set up house in the same nesting box. I have written about them before too. I love to watch them in flight because of their ability to change direction instantly darting left and right as they pursue insects. It’s hard to watch them fly and not believe they are enjoying every second of their lives. While the female is sitting on the eggs the male, who I have named Captain America, sits on top of the eagle on the top of the flagpole and will defend the nest against all comers.
Baltimore oriole at our feeder
The birds, however, that I enjoy watching the most are the House Wrens. Last spring my wife went out to hang some clothes from a clothesline. She reached for a clothespin and realized there were a bunch of sticks protruding from the bag. She slowly opened it and saw it was a bird’s nest with three eggs nestled in the sticks. After some searching on the Internet we discovered it was the nest of house wrens and spent much of the summer observing their behavior. This year, being unable to find the clothespin bag we hung out a <a that I had made during the winter in the exact same spot and were not disappointed as the wrens quickly began building their nest in it.
A female house wren bringing in a sack of spider eggs into the nest. It’s believed that when the spiders hatch, they eat some of the mites that have been brought in by the adults and then when they get bigger they are eaten by the growing wrens.
With both the wrens and the swallows, the males participate in the raising of the young. Below is a video I took last year and last week, which looked like the final day of nest building. The female is now sitting on the eggs while the male spends much of his time sitting on the laundry line poles waiting for the eggs to hatch. Once hatched both the male swallow and wren are totally involved in feeding the chicks and protecting the nest. We have no way of knowing if these are the same birds from last year.
What I enjoy so much about watching these birds is their devotion to each other, raising the young and their seeming enjoyment of life itself even though it’s hard work and demanding. While we humans are ever striving to modernize our lives and gain more possessions, the habits and purposes of these birds have changed very little over time. I think we could all benefit by not being so quick to adopt change for change’s sake to improve our daily lives and be happier with the simple gifts. And, oh yes, the time spent observing and videotaping the birds goes a long way to improving my outlook on life.
*All of the pictures and videos contained in this blog were taken on our property
Posted in Ability, Attitude, Behavior, Birds, Community Inclusion, Education, Nature, Observation, Reality, Recreation, Sensitivity, Stuggling
Tagged control, depression, life lesson, lifestyle, natural environment, outdoors, physically challenged, Recreation, society, using your mind
Turkey season in upstate New York has been open for a week now. I’ve been able to get out five days and have probably averaged about 5 1/2 hours of hunting time each day. Since the season began I have seen only three hens and they were quite a ways away. It’s much more difficult to hunt turkeys during the fall season. In the spring, both the hens and gobblers are moving most of the day. Hens wander off each day to lay an egg in their secluded nest and then returned to the Toms. After they have a clutch of 10 to 12 eggs they begin nesting and the gobblers start moving around looking for a female to breed. This makes them very susceptible to calling.
In the fall turkeys follow eating habits and rarely call to each other. So, it is extremely difficult to call them into range. The technique, able-bodied hunters use, is to move quickly through the woods until signs are found that the turkeys are near and then try to call them in. This is so difficult that many able-bodied hunters don’t bother hunting turkeys in the fall.
My friend Andy likes to say we are going to be sitting in our chairs all day anyway, so we might as well enjoy what we’re doing. It is that philosophy that takes me to the blind most days in the fall. Today was an exceptionally special day and I would like to share some of the “events” that nature chose to share with me. The blind I went to today is on the west side of a field that runs north and south. It was unusual that I arrived there around 9 o’clock as that’s quite early for me. The sun was coming up directly in front of me and treated me to several special sights. A heavy dew was on the grass in the field and the sunlight reflected off it looking like 1000 little twinkles. I was also aware that more than half of the field was covered with shadows created by the trees in the hedgerow across from me. While I was watching the shadows slowly grew smaller, but what was really wild was watching them move to my left as the sun slowly arced to my right. Neither of these was a fast process and you could almost see the shadows move slowly.
By noon I was getting extremely warm and began to be concerned about overheating. This process can lead to autonomic dyslexia, which can be a life-threatening emergency. I decided to leave. When I got home it was 76° and I knew I had made the right choice. It’s supposed to rain tomorrow, but Sunday is forecast to be sunny and in the mid-50s. There’s still a week of the season left and because I love being out so much I’ll try again.
Young gobbler walked by this blind shortly before season
Posted in Ability, Adapting Equipment, Attitude, Behavior, Birds, Determination, Disability, Education, Hunting, Nature, Observation, Reality, Recreation, Sensitivity
Tagged adapting, control, hunting, life lesson, physically challenged, quadriplegia, Recreation, using your mind
Andy arrived on the 17th of August and left yesterday around noon to fly back to Salt Lake City. Our week together is very special to me. He is much more involved with the disabled community than I am. He is much more outgoing and gregarious than me. Many of those who know me would be surprised by the fact that basically I am quiet, shy and retiring. Having been an educator for over 34 years I am at ease speaking and interacting with groups, but on a personal level I tend to limit myself to a few close friends none of whom are disabled. Andy’s visit is much more unique for me than I believe it is for him. Since we share the same injury level, a very similar outlook on our situation and the love of all things outdoors we are closely bound together.
We always do some different things while Andy is here. This year he went with me to the Outdoor Adventure Day at Fort Drum (the home of the 10th Mountain division) where we manned a booth for Handihelp which displayed many of the adaptive equipment we have made and a lot of pictures of what those adaptions have allowed us to do. It’s always enjoyable to speak with the people who stop by and have questions about our lifestyle and things we’ve done.
With Smokey the Bear at Ft. Drum
One thing we do every year when Andy comes is participate in the Annual Quadriplegic Fishing Derby. In reality, it’s just Andy and me going fishing with our friend Dean of Dean Meckes Charters
and my buddy Steve Robinson or my son Mark. We caught a few fish, but that’s not the real reason we go. The time spent on the beautiful St. Lawrence River and the solitude of being out there is irreplaceable. The other annual happening is our visit with our friends Maia, Maddy, and Tonya Chamberlain for ice cream. It’s a chance for Andy to spend some time with Maia.
Andy with a bass
The most meaningful part of Andy’s visit for me is not the activities that we do, but rather the downtime at home when we can just talk about our situation, lifestyle and the mental and physical challenges we must deal with. This is the only time that I get to talk with someone who truly understands the ramifications of the challenges I face. While I do talk to my friends and my wife Marge at times, no one understands all the nuances that go along with being a quadriplegic. So, the time Andy’s here is like no other.
Andy comes to northern New York because it is much “easier” for him to travel than it is for me. However, we have begun discussing the possibility of my going to Utah and spending a week with Andy and his friends. The idea of it is very seductive.
Finally, I would like to thank Marge for her role in making this week possible and the others who helped make this week so special.
Andy, Maia and me
Posted in Ability, Attitude, Community Inclusion, Disability, Education, Fishing, Friends, Friendship, Nature, Reality, Recreation
Tagged fishing, Lake Ontario, lifestyle, natural environment, outdoors, physically challenged, quadriplegia, Recreation, relationship
If an individual has a disability, they will be greatly aided in their journey through life with a sense of humor. We have all heard the expression, laughter is the best medicine and I am absolutely sure that this is true. Being realistic I think developing a sense of humor may take some time after the onset of a disability. It’s my feelings, if the disability limits the person in certain ways the individual may well have to go through a grieving process.
Going to the dentist on Halloween
In my own case my quadriplegia has rendered 75% to 80% of my body paralyzed. While the paralysis starts below my armpits my arms have also been greatly affected. They have limited range of motion, intermittent feeling at best and my hands have little to no grip.
Regardless of the cause of the disability an individual has every right to feel anger, bitterness, frustration and wonder “Why me?” Depending on the circumstances, these feelings can fall onto quite a continuum. My “accident” was the result of a condition called Shore Break which was known by the National Park Service to exist in the Virgin Islands, but was pretty much kept from the beach goers. Hawaii requires, by law, warning signs be posted on any of its beaches where this condition exists. While bitter about their choice not to warn people the situation was easier for me to accept knowing it occurred while doing something I loved. How victims deal with things like being struck by a drunk driver I’ll never know, but I do know one must move on. Accepting what has happened is the beginning, a first step.
Out to eat with my new bib
In spite of an individual’s situation, what good is wallowing in self-pity going to do? After due time, one must move on. Humor can aid in that process. Even for able-bodied individuals, being able to find humor in things, being able to laugh at oneself and the situations one finds themselves in is cathartic. In no way do I mean to imply this is easy or will come naturally to most people, but “gallows humor” can really be beneficial. So my question to you is “What’s in your wallet?” Only kidding, it’s “If you can’t laugh, how’d you get here?”
Posted in Ability, Attitude, Behavior, Community Inclusion, Disability, Education, Humor, Observation, Reality, Recreation
Tagged control, life lesson, lifestyle, physically challenged, quadriplegia, Recreation, society, using your mind