Tag Archives: quadriplegia

He Was A Son Of A Bitch

We can call him Tommy and he definitely was a son of a bitch. Even given that, everybody still like him and he was popular in the neighborhood until he was hit by a car. Unfortunately, Tommy’s back was broken and he was left paralyzed. After that people didn’t seem to care about him that much anymore.

Then Tommy met Susan Fulcher and she was ready to help Tommy just like she had helped dozens of other dogs who were paralyzed. Susan runs the Dharma Rescue Organization in Los Angeles California. As I watched the video and listened to the reporter on the CBS Evening News last night I knew this was something that I wanted to share. Each dog is fitted with a custom “doggie wheelchair” and then helped to adjust to their new lives helping others.
Rolling Along

What struck me about the report was the dogs’ ability to quickly overcome and adapt to their disability and new life. I started thinking they must have accepted what had happened to them, did little or no reflecting about the what ifs and so were ready to move on. While I was going through rehabilitation at Craig hospital, I was overcome by the thought that my new life would be unproductive and I would just exist until I passed away. After a while, I began to realize what happened to me in my new life was almost completely under my control. I made some mental (attitudinal) adjustments and began to move on with a more positive outlook. These dogs just move on approaching their new life with enthusiasm and thus have the ability to help others. It is absolutely critical, I believe, for an individual who has suffered a catastrophic life changing event to accept what has happened to them and move on. Little good can come from dwelling on what has happened and wondering about the what ifs.

It was years ago, after Christopher Reeve’s injury that his attitude of nothing was going to prevent him from walking again caused dissension in the disabled community. He finally realized and accepted the fact that he would be paralyzed for the rest of his life. I don’t think an individual can move forward with their life if they refuse, at least on a conscious level, to accept what has happened. Let these dogs serve as an example of what can be accomplished if we are willing to accept what has happened to us and move forward.

Alternative Facts

Alternative Facts

Alternative Facts

I Went For a Walk the Other Night

The doctor thought for a minute or so and said it sounds like restless leg syndrome. Which at first seemed pretty bizarre since I am paralyzed. Those are the symptoms of restless leg syndrome he reiterated. They had begun back in 1999 when I was injured. Over the years they had lessened in frequency, but I still had at least a couple of times a week. If I didn’t take the medication right away it led to night terrors and panic attacks that would possess me for hours.

Going for a Walk

Going for a Walk


As odd as it seemed just his defining the condition led to a decrease in frequency. I had learned early on to take Xanax at the earliest of symptoms otherwise it was impossible to avoid the onset. The drug would usually put me to sleep for several hours and I’d a wake disoriented. The decrease in frequency was a blessing in itself and started me wondering if there might be another way to deal with it now.

For a long time, prior to my injury, I had used imagining as a tool in my life. I realize I have already written about it a couple times (Visualization Worth Looking Into and In My Mind I’m Going To Carolina), but this was another use for the powerful practice. In thinking about it, I decided if my legs want to go for a walk, then why not take them for a walk. Early one morning I woke up around 4:30 am. As the initial feelings started; my legs feeling like cement, tingling and then progressing to the overwhelming feeling to move them, I closed my eyes and visualized myself swinging my legs off the bed and onto the floor. Next it was step by mental step walking down the hall and outside. I could not believe how easy it was and how satisfying it was physically and more important mentally. Since that night I have gone jogging and even rode my bike. However, the greatest benefit is that I have not had a recurrence of the syndrome in a couple of months.

The mind is a powerful asset.

I’ll Try Again

Turkey season in upstate New York has been open for a week now. I’ve been able to get out five days and have probably averaged about 5 1/2 hours of hunting time each day. Since the season began I have seen only three hens and they were quite a ways away. It’s much more difficult to hunt turkeys during the fall season. In the spring, both the hens and gobblers are moving most of the day. Hens wander off each day to lay an egg in their secluded nest and then returned to the Toms. After they have a clutch of 10 to 12 eggs they begin nesting and the gobblers start moving around looking for a female to breed. This makes them very susceptible to calling.

In the fall turkeys follow eating habits and rarely call to each other. So, it is extremely difficult to call them into range. The technique, able-bodied hunters use, is to move quickly through the woods until signs are found that the turkeys are near and then try to call them in. This is so difficult that many able-bodied hunters don’t bother hunting turkeys in the fall.

Waiting

Waiting

My friend Andy likes to say we are going to be sitting in our chairs all day anyway, so we might as well enjoy what we’re doing. It is that philosophy that takes me to the blind most days in the fall. Today was an exceptionally special day and I would like to share some of the “events” that nature chose to share with me. The blind I went to today is on the west side of a field that runs north and south. It was unusual that I arrived there around 9 o’clock as that’s quite early for me. The sun was coming up directly in front of me and treated me to several special sights. A heavy dew was on the grass in the field and the sunlight reflected off it looking like 1000 little twinkles. I was also aware that more than half of the field was covered with shadows created by the trees in the hedgerow across from me. While I was watching the shadows slowly grew smaller, but what was really wild was watching them move to my left as the sun slowly arced to my right. Neither of these was a fast process and you could almost see the shadows move slowly.

By noon I was getting extremely warm and began to be concerned about overheating. This process can lead to autonomic dyslexia, which can be a life-threatening emergency. I decided to leave. When I got home it was 76° and I knew I had made the right choice. It’s supposed to rain tomorrow, but Sunday is forecast to be sunny and in the mid-50s. There’s still a week of the season left and because I love being out so much I’ll try again.

Young gobbler walked by this blind shortly before season

Young gobbler walked by this blind shortly before season

A Chair

A ChairTake a minute and try, try hard, to imagine sitting in a chair for 12 hours (a day), 84 hours (a week), 2,520 hours (a month), 30,240 hours (a year), and 302,400 hours (a decade). I could keep going, but I hope by now you’ve got the point. This is not a “timeout” punishment. Can you imagine the repercussions today if the teacher made a child sit in a chair all day? It is also not cruel and unusual punishment that might take place in Guantánamo Bay. This is just a situation some of us in the disabled community find ourselves in. While in the chair you can’t leave to go to the bathroom or get up to go to the dinner table, you’re there till taken out. Thank God someone, a long time ago, figured out to put wheels on the chair so we can at least move around. Depending on the level of injury travel can be initiated with the hands, a joystick or a sip puff device. With a sip and puff device the individual controls the movement of the chair by sipping or puffing on a straw like device that is in their mouth.

Some individuals adjust to the situation better than others. Usually, it takes time. Looking back on my life prior to my injury I have the impression that rarely did I ever see individuals with serious disabilities acting happy. In my memory most seemed old and very unhappy (not you Ami). I purposely try to be animated and positive when out in public. Generally speaking, the other few wheelchair bound individuals I know often present in a similar manner.

At times, I wonder if some people in the able-bodied community misinterpret this behavior, thinking maybe it’s not that tough to be in a wheelchair. Often when thinking about this the words Bob Dylan sings in one of his songs comes to mind “Did you ever see the frowns on the jugglers and the clowns when they did their tricks for you?” To be in the chair day in and day out is anything but easy. Most people never see the struggles that go on physically and mentally each and every day. To have made the adjustment to living your life with value and dignity while dealing with a major disability is never easy. Every day is a struggle! Some days it’s easier to adjust than others. Some of the special days make most of the other days bearable. But let me assure you if you’re not in a chair you have no idea.

Welcome To Our World

Earlier this week

Earlier this week


In the blog Andyticipation I wrote Andy comes to northern New York because it is much “easier” for him to travel than it is for me. The word “EASIER” was in quotation marks because it is a relative term. At 6′ 4″ 260 pounds, it is usually a disaster when I travel, but it is far from “easy” for most individuals with disabilities to travel any distance.

Andy left here August 24th around noon to return to Utah. He flew from Watertown to Philadelphia, Philadelphia to Phoenix and then finally to Salt Lake City. When he got to Phoenix there was a weather delay, so his flight was canceled until Thursday. I’m sure if you stop and think a minute it’s fairly easy to realize the tremendous inconvenience this would be for a man with quadriplegia. The airline decided to put him up in a hotel in Phoenix. Andy got into a taxi and headed for the hotel. He told me the taxi driver was going like a bat out of hell. When arriving at the hotel the taxi driver slammed on the brakes and Andy was thrown out of his chair breaking his leg. He was pretty sure his leg was broken, but it wasn’t until Thursday afternoon he was able to get to a hospital in Salt Lake City where they put on a soft cast. The cast will stay on from 4 to 6 weeks. Imagine what it will be like to be in a manual wheelchair with one leg straight out in front of you for that length of time. How do you get close to anything? Andy, however, is approaching it with his usual determination to make the best out of a bad situation.

Welcome to our world.

Andyticipation

Andy arrived on the 17th of August and left yesterday around noon to fly back to Salt Lake City. Our week together is very special to me. He is much more involved with the disabled community than I am. He is much more outgoing and gregarious than me. Many of those who know me would be surprised by the fact that basically I am quiet, shy and retiring. Having been an educator for over 34 years I am at ease speaking and interacting with groups, but on a personal level I tend to limit myself to a few close friends none of whom are disabled. Andy’s visit is much more unique for me than I believe it is for him. Since we share the same injury level, a very similar outlook on our situation and the love of all things outdoors we are closely bound together.

We always do some different things while Andy is here. This year he went with me to the Outdoor Adventure Day at Fort Drum (the home of the 10th Mountain division) where we manned a booth for Handihelp which displayed many of the adaptive equipment we have made and a lot of pictures of what those adaptions have allowed us to do. It’s always enjoyable to speak with the people who stop by and have questions about our lifestyle and things we’ve done.

With Smokey the Bear at Ft. Drum

With Smokey the Bear at Ft. Drum


One thing we do every year when Andy comes is participate in the Annual Quadriplegic Fishing Derby. In reality, it’s just Andy and me going fishing with our friend Dean of Dean Meckes Charters and my buddy Steve Robinson or my son Mark. We caught a few fish, but that’s not the real reason we go. The time spent on the beautiful St. Lawrence River and the solitude of being out there is irreplaceable. The other annual happening is our visit with our friends Maia, Maddy, and Tonya Chamberlain for ice cream. It’s a chance for Andy to spend some time with Maia.
Andy with a bass

Andy with a bass


The most meaningful part of Andy’s visit for me is not the activities that we do, but rather the downtime at home when we can just talk about our situation, lifestyle and the mental and physical challenges we must deal with. This is the only time that I get to talk with someone who truly understands the ramifications of the challenges I face. While I do talk to my friends and my wife Marge at times, no one understands all the nuances that go along with being a quadriplegic. So, the time Andy’s here is like no other.

Andy comes to northern New York because it is much “easier” for him to travel than it is for me. However, we have begun discussing the possibility of my going to Utah and spending a week with Andy and his friends. The idea of it is very seductive.

Finally, I would like to thank Marge for her role in making this week possible and the others who helped make this week so special.

Andy, Maia and me

Andy, Maia and me