Memorial Day this year was sunny and probably around 55°. It was a quarter after nine and I was heading to one of my blinds to turkey hunt. I drove across one field, down an abandoned road to get to the blind that had been built for me years ago by my young friend Daniel. I never go there that I don’t think of it as kind of a memorial to him. Daniel was the victim of constant bullying, but I’ll never forget him.
Blind and tree
I got behind the blind and all situated to see what the morning was going to have to offer. Not having to wait very long, two deer scampered across the field from one side to the other. Probably an hour later I noticed a gobbler walking in the field probably 60 or 70 yards from where I was. As any turkey hunter knows that is way too far for a shot. Calling softly to the turkey seemed to make no difference at all. The tall grass covered everything but his head. I knew from the color it was a male. All of a sudden, he stopped in his tracks and seem to go into full alert mode. As I surveyed the field, I could see no reason for his aroused behavior. Then he immediately dropped down into the grass and I was unable to see him at all. After watching his head periscope up two or three times it went down, and I didn’t see him for 15 or 20 minutes although I kept watching. Suddenly, to my amazement beautiful dark red coyote sprang out of the grass in an effort to catch the tom.
Two deer from the blind
The turkey sprang into the air and flew into a huge tree right in front of me. The coyote ran back and forth as if trying to figure out what to do now. He quickly lunged in another direction and a second gobbler, which I had never seen, sprung into the air and flew into the same tree. After spending about 15 minutes trying to figure out what had gone wrong the coyote finally trotted away.
Reflecting on what happened, I realized that the coyote must have crawled through the grass to reach the point where he jumped up trying to catch the turkey. From where I was, I had a complete view of the field and would’ve seen the coyote if he was at all visible. The turkeys remained in the tree for almost an hour. Finally, one flew off in the opposite direction. About 15 minutes later the other one flew out landing about 30 yards to my left. I had a good shot so took the opportunity to harvest the bird.
Coyote from my Trail Cam
Since I was injured over 20 years ago, I appreciate the uniqueness of everyday and absorb what life has to offer. To the turkey I’m just another predator. He does not care I’m in a wheelchair or that I fire my weapon with my mouth. I like matching my skills against theirs. Today, however, was still a very special experience.
End of a special morning
Posted in Ability, Adapting Equipment, Adaptive Technology, Attitude, Determination, Disability, Education, Hunting, Nature, Recreation, Sensitivity
Tagged adapting, control, hunting, life lesson, lifestyle, natural environment, nature, outdoors, physically challenged, Recreation, turkey
This is a line from a song by the Stylistics called “Betcha By Golly Wow” that was a hit in 1972, but it sums up my feelings for today. What have I been waiting for forever? Well, not really forever, more like since early October 2018.
One of the symptoms of a quadriplegic is the body’s inability to control its internal temperature. An individual is COLD almost all the time. The one daily exception is when you wake up in the morning and that ends as soon as you expose your arms. For one who is supposed to have no feelings below his arms I have all kinds of feelings below my arms and the most constant one is cold shivering. Almost always I wear a knit hat. Even in bed at night I have a hand towel draped over my head and sleep that way year round. Dressing with three or four layers of clothing on top and two on the bottom makes little difference. Mornings, when the weather is bad, I spend the first hour or so in front of the fireplace.
Today April 17, 2019 is the day I’ve been waiting for (it seems like) forever. Fifty-eight degrees, no wind and few clouds. Out I went to my usual spot next to the garage, tilted my wheelchair back and basked in the morning sun. Its heat bathed my body. My body was warm for the first time since early October. Early man had no greater appreciation for the sun than I do today. This day is so magical I have written several blogs about it before. (“Sittin’ In the Mornin’ Sun & Life As An Iguana”)
Unfortunately, this experience is limited. As the sun rises higher in its orbit, we reach a point when the heat becomes dangerous to our well-being. Since there is no control of our internal temperature we can quickly become overheated leading to heat exhaustion or worse yet, heat stroke which can easily lead to Autonomic Dysreflexia which is a life-threatening emergency. Almost always we do not even know it’s happening until it is too late. The older I get the more I realize it’s the simple things in life that are the most important. So, what is the message: Carpe diem.
Posted in Attitude, Behavior, Community Inclusion, Determination, Disability, Education, Nature, Observation, Reality, Sensitivity, The Struggle
Tagged control, life lesson, lifestyle, outdoors, risk, society
People with disabilities make up the largest minority group in the United States. Unfortunately, its ranks are growing every day. People who experience the onset of a disability are immediately faced with a variety of challenges. Many, I believe, go through a period of mourning or grieving, depression and sometimes even contemplate suicide. They have many questions which at first seem to have no answers or solutions. Probably the most common one is “Will my life ever be the same?” The answer in most cases, unfortunately, is no. Individuals who have suffered moderate to severe disabilities will never be able to return to life as it once was. However, after a period of mourning and rehabilitation they must begin to develop and adjust to a new lifestyle. In the beginning many people often try to solve the challenges they now face with the same techniques they did prior to their disability. Most of the time because of changes brought on by the disability the “old ways” don’t work anymore. To continue this type of approach can lead easily to frustration in the short run, discouragement and failure in the long run. Some individuals seem willing to accept failure as the ultimate outcome. Over time this acceptance can become a way of life. Believing, if I tried to do this and can’t do it, why should I try something else because I won’t be able to do that either. After a while I believe this can become, what I like to call, learned helplessness and the individual retreats to a highly sedentary lifestyle. The disability is now dictating how they live.
The onset of a disability often results in the loss of some part of the body’s “normal” function. Over time and therapy an individual could see the almost complete return of function, partial return or little or no return. Far more important than the loss of normal body function is the loss of the skill that the function facilitated. So, it is the skill that must be replaced, and make no mistake, most skills are replaceable. The important point here is skills are almost always replaceable. From a cultural point of view, there are normally several accepted ways to perform a certain task, to the exclusion of many others. If the disability prevents an individual from performing a task, a new skill for completing that task must be found. This can be accomplished by adapting equipment and/or finding a totally new way of doing it. One of the important characteristic critical to moving on is attitude, especially the attitude toward failure. Most people don’t realize that one’s attitude about failure is learned. A young baby trying to turn over, crawl or learning to walk has no concept of failure, imagine if a baby tired of failing all the time accepted failure and stopped trying. They would never learn to roll over, crawl or walk. Accepting failure as part of a bigger process enables the individual to learn and continue moving forward. If attitude toward failure is learned, it can be unlearned or at the very least modified. In reality, there are many alternative ways to solve a particular challenge. Progress may be slow at first, but over time they become enabled and take control of their future called learned empowerment.
Posted in Ability, Attitude, Behavior, Community Inclusion, Determination, Disability, Education, Humor, Observation, Reality, Recreation, The Struggle
Tagged adapting, control, Courage, life lesson, lifestyle, physically challenged, relationship, risk, society
Being lifted into place
Looking down at the floor of the roof in front I saw some items that, even though it had been over 20 years, their names came rushing to me. Prussik loop, spectra cord, a Figure Eight on a bight and a couple of daisy chains. These were things I had used extensively in the 1990s, when I ran a challenge course for the local school district where I taught. My mind began drifting back to that time. Climbing and rappelling were part of most days when I would be hosting one of the grades from the school. I could remember the feelings of freedom, self-control and exhilaration as I controlled my descent to the ground. Suddenly a loud voice broke my daydreaming and I was quickly brought back to reality. It was June 9, 2018 and I was being prepared to rappel off a 16-story building in Watertown New York.
Three years ago, my good friend and colleague, Steve Robinson had gone Over the Edge (OTE) as part of an annual fundraiser for the United Way of Northern New York. He dedicated his fundraising efforts to me because he knew I would be doing it if I could and nobody thought I would ever rappel again. His effort got me thinking and I began to wonder if maybe I could do it. I knew there would be lots of issues and lots of reasons to say no, but I decided to try. To my surprise the two major organizations involved, the United Way and the people from Over the Edge, were very receptive. Over the past 19 years I had become used to people telling me there was no way I could do this or that.
The rappel today was going to be different. Not only was there new hardware like the RIP descender, but I was going to be doing it in my wheelchair. I felt this was an opportunity to pay back to the people of the community that had given so much to my wife and I over the past 19 years. The United Way donates money to a number of charities and local groups. I also hope my going Over the Edge would remind everybody that we are all capable of doing much more than we think we can. That lesson has been driven home to me time and time again since I became quadriplegic.
Rappelling down Midtown Towers
Family members and most of my friends truly thought this was crazy. Why, many of them asked, place yourself in this risky situation? None of them realized the risk was totally perceptional. My descent would be one of the safest things I have ever done. With the help of several skilled professionals and soldiers from the Sergeant Audie Murphy Club from Fort Drum I was prepared and placed into position for my descent. Because of my limited range of motion another person would be going with me to help facilitate a smooth descent.
As I began my way down I happened to glance a few blocks away and notice an individual sitting in a wheelchair watching me. I could only wonder what they were thinking, but I found myself wanting to yell to him “It all starts with a dream.”
In closing, I would like to recognize the people who helped make this possible Bob Gorman of United Way, Robert Pitkin of Over The Edge, Les Brook of Marra”s Homecare, Bruce Wright of Guilfoyle Ambulance, my good friend Steve Robinson and all who donated the United Way of NNY.
Posted in Ability, Adapting Equipment, Adaptive Technology, Attitude, Behavior, Community Inclusion, Determination, Disability, Education, Friends, Friendship, Observation, Reality, Recreation, The Struggle
Tagged adapting, control, life lesson, outdoors, physically challenged, Recreation
South Jeff Plungers
The United Way of Northern New York and Over the Edge is providing me with this unique opportunity to go Over the Edge in my wheelchair. Marra’s Homecare and Guilfoyle Ambulance are also helping to make my participation possible. In addition to giving back, I want people to understand that disability does not mean inability. The greatest limiting factor we all face is our attitude. Henry Ford once said, “If you think you can do a thing or you think you can’t do a thing you’re right.”
In June I will be part of a 4 person team of retired South Jefferson Central faculty members who will be *rappelling off a 16 story building in Watertown, NY. This is a geat chance for me to help many of the communities who have encouraged and supported me.
* lowering oneself by use of a rope attached to the body off cliff or building
“The Museum of Failure is a one of a kind international collection of more than 100 innovation failures. For every successful product corporations put on the market, there are many failures behind it.”
The other night, while watching the nightly news, I saw a report on the opening of the Museum of Failure in Sweden. It’s about time. There are many displays in the Museum include the Ford Edsel, Google Glasses and Colgate Kitchen Entrees to mention a few, but without a doubt, my favorite is Harley Davidson Perfume. While the Museum is devoted to failed innovations made by famous corporations, there are however still many lessons to be learned here about failure in general.
Harley Davidson Perfume
Marlboro Ice Cream
When speaking to groups the concept of failure is something that I try to encourage all people to understand better. It is important to remember that an individual’s attitudes and reactions to failure are learned. That is easily proven by looking at a young child learning to walk. Toddlers have no concept of failure. Imagine if they did and decided after standing and falling many times, it wasn’t worth the effort to keep trying. Obviously, they would never learn to walk. One Sunday night while watching an interview on 60 Minutes with Lebron James the interviewer asked him if he could give one piece of advice to young children watching what would it be. Without hesitation, he responded “Don’t be afraid to fail.”
Speaking to a group
When I was young I often looked at failure as an end in itself. It greatly affected my interactions in just about every aspect of my life. Venturing into a situation where the possibility of failure was great was carefully weighed. Even when I began teaching I was hesitant to try new and different ways to reach and involve my students. Fortunately, after being frustrated by what I perceived as an inability to engage all my students, I began trying new and different methods and strategies. Some were successful, and some weren’t, but learning was taking place in both cases.
For any individual, especially those with a disability, I believe it is critical to look at failure not as an end, but rather an opportunity to learn, grow and move on.
Many individuals who are disabled have some type of compromise of motor skills. It’s not the loss of the coordination that is the problem, it is the loss of the skills associated with it. However, those skills can be replaced! A society usually has a few accepted ways of accomplishing an activity (i.e. Catching a fish). However, looking at all societies there are a tremendous number of other ways developed to accomplish the same or similar activity. If attempts to develop a new skill fails and that is accepted as a final result anybody would have a hard time moving on. On the other hand, if failure is looked at as a temporary outcome to be learned from and grow, the chances of developing the new skills necessary in an individual’s life become possible. So, don’t let failure prevent you continuing from persisting to progress. Start looking at failure as an opportunity.
Oh, and the Museum of Failure is such a great success it’s going on tour.
Posted in Ability, Adapting Equipment, Attitude, Behavior, Community Inclusion, Determination, Disability, Education, Independent Living, Observation, Reality, Stuggling
Tagged adapting, control, life lesson, physically challenged, society, using your mind
If you’ve been watching the news during the recent invasion of arctic air deep into the United States, you’ve probably seen or heard of iguanas in Florida falling out of the trees seemingly frozen to death. However, wildlife experts cautioned against making the mistaken assumption that these animals are dead. While there seems to be no respiration or heartbeat they are alive and if the weather warms up in a few days they will come back to life and resume their normal activities. What is causing this phenomenon is a condition known as poikilothermic. Poikilotherm is a characteristic among most reptiles in which their body temperature is determined by their environment rather than by their body’s ability to produce heat. They are cold blooded. When the iguana’s temperature drops below 30 degrees they can no longer carry on normal activities including holding on to a branch. We, on the other hand, are members of a group of animals who are known as homeotherms (warm blooded) meaning our body temperature is controlled by the body itself regardless of the environment we happen to be in. Being able to regulate body temperature is a major reason humans are found all over the world regardless of climate type.
Frozen Iguana in Florida
Iguana fallen out of tree
Quadriplegia brings many changes to the body most of which able-bodied people are totally unaware of. One of the most serious is that our body loses the ability to control its temperature. This can lead to an extremely serious condition known as Autonomic Dysreflexia which can be life-threatening very quickly. The body of someone who has become severely paralyzed loses the ability to sweat or shiver. Each of these body functions is critical in helping to regulate body temperature. For a person with quadriplegia on a warm day their body cannot prevent its temperature from rising. Worse than that is the individual has no idea that his temperature is reaching a critical point. This threat forces many of us to spend much of a beautiful sunny day indoors. A cold environment causes a lowering of body temperature which is just as serious. Unfortunately, the temperatures do not even have to be extreme for these conditions to occur.
Another effect of this phenomena is that a person with quadriplegia is almost always cold. Even on relatively warm days unless they are in direct sunlight their bodies give them the sense of being cold. Probably 360 days a year I can be found with a knit hat on my head and at night when I go to sleep, I always have a small hand towel draped over my head. It’s hard to understand how a body which is supposed to have little actual feeling can have the sense of so much phantom feeling and pain.
Soaking Up The Sun
Normally when iguanas wake up in the morning they make their way to a spot that has direct sunlight and remain there until their body temperature rises high enough for them to pursue their effort to secure food. Just like iguanas when I first get up on a warm day I go out and sit in the sun and rejoice as my body warms up. While you will not find quadriplegics dropping out of the trees on a cold day you can bet they are always struggling to stay warm.
Life As An Iguana
Posted in Behavior, Community Inclusion, Disability, Education, Nature, Observation, Personal Safety, Reality, Sensitivity, The Struggle
Tagged adapting, Caregiver, life lesson, lifestyle, natural environment, outdoors, physically challenged, quadriplegia